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Sparkles, Seizures, and Siddurim

Written on June 12, 2025: Today was Sarenas end of year celebration and siddur party. A day I didn’t know if we would get to. A day I’ve cried just thinking about. This morning Sarena woke up and twirled her way out of bed so excited for her performance! She knew every line to everyContinue reading “Sparkles, Seizures, and Siddurim”

The Girl Gangs gonna do what the Girl Gangs gotta do

It probably comes as no surprise to anyone to hear that parenting is getting harder as Sarena gets older. What may be less obvious is that Sarena herself is not the most challenging part of this crazy ride. In case you forgot, or didn’t get a chance to read my earlier blogs (critics say theyContinue reading “The Girl Gangs gonna do what the Girl Gangs gotta do”

The Outside Light-published in Ami Magazine chanukah edition 2021

The Outside Light It is a natural human instinct that in times of darkness we look for the light. When the power goes out, we immediately reach for candles, flashlights, open the curtains, try to find any source of light to brighten our surroundings. When my daughter was diagnosed with Dravet syndrome, a rare, severe,Continue reading “The Outside Light-published in Ami Magazine chanukah edition 2021”

Before, After, and Now- published by Ami magazine

I think every person has the ability to look at their life as a series of “befores” and “afters”. In most cases, the befores and afters are moments to be commemorated or even celebrated, but once in a while those moments can be so life changing that it is hard to imagine what life wasContinue reading “Before, After, and Now- published by Ami magazine”

Don’t cry over spilled bleach

“We can believe that caterpillars turn into beautiful butterflies, but when the caterpillar is crawling around on your picnic blanket, you may want to squish it instead of wait for it to form a cocoon and sprout wings. Just sayin’.

Earnin’ my Birkin

Did you know that June is Dravet Syndrome Awareness month? Well, you’re in good company because I did not know either, until last year that is. In fact, about a year and half ago I had never even heard of Dravet Syndrome at all. Then…everything hit the fan and I knew I had to learn.Continue reading “Earnin’ my Birkin”

Designer Epilepsy

When working at a sleepaway camp during the summer of 2018 I was asked to speak to the oldest group of campers and staff to inspire them with a personal story or experience. As an educator I know that the best way to inspire young students is by sharing something personal, something shocking. After rackingContinue reading “Designer Epilepsy”

Planting Tears

Have you ever heard the phrase “הזורעים בדמעה ברינה יקצורו” “Those who sow in tears will reap with joy” (tehillem/psalm 126 passuk/verse 5)? Well I have, many many times. Have I ever paid it much attention? Maybe, but not really. In the last few weeks (just kidding, months. Just kidding, years) I have cried aContinue reading “Planting Tears”